Discovering a SkiBike..
Justin DeBoer 4/08/2003
~~~They say MS is not a painful disease. “Hi Dad. You make the condo reservations.
The whole family wants to go skiing over New Years.” Lisa, my daughter, was
probably infused with an overdose of self-esteem as a child. As a thirty-year old adult,
it is almost impossible for me to say no to her much less win an argument.
Photo: Justin takes a break at the 2003 SkiBike America Festival, Durango Mtn, CO >>
~~~A few years ago when I turned fifty, I did a self-evaluation. I decided instead of being an average participant in a lot of activities, I was going to try to be good at one thing. What could I do well or learn to do well? Skiing. My family liked it. I could ski with my grandchildren probably into my seventies. Great!
~~~MS? “Well, it’s a very hard disease to diagnose.” I have no feeling in my right leg, ‘banding’ around my chest, a numb left arm and numb fingers. “Well this is frustrating. I know when the lights go out on my car, I replace the bulb. If it still doesn’t work, follow the wiring until you find the break. With all this fancy equipment, can’t you do that with nerves?”
~~~“It’s not that easy.” (How much is this going to cost?) “You have the classic symptoms, you’re in your late thirties so you’re the right age and your MRI and spinal tap tell us, unfortunately, that you have Multiple Sclerosis.”
~~~Great! I live in a tri-level house, ride motorcycles, race go-karts, play sports and have two kids in junior high. What now? And how fast will the disease progress before I can’t walk or stand? Think... Think...
~~~It’s almost Christmas. I know! Let’s go to LA for Christmas while I can still walk, take the kids to see Mickey Mouse and take in the sights of southern California. We’ll worry about the house, the car and my adult toys when we get back to Oregon.
~~~I think the doctors screwed up. It’s been a few years since I saw my neurologist and most of my symptoms are gone. Pass that off to a bad, scary experience and get on with life. In fact, I need new skis. If we’re going to go skiing in Idaho every year I’d better have some new equipment.
~~~“Come on dad. We haven’t skied the last two years. I talked to Brent and Kellie. They can go. We’ll have the whole family together. How many more times can we do that? You’ll be fine.”
~~~Yah, great. I’ll be fine sitting in the condo watching Days of Our Lives and Dr. Phil. Shoot me now!! I was skiing great when my symptoms came back a few years ago only now my legs had no stamina and my balance was shot. The last time I skied it was over New Years of 2000. As long as I was moving I was OK but when I stopped I fell over.
~~~MS is a very painful disease. When I fell it was usually on a flat spot or in the ski lift line. My pride hurt and my body hurt. Three or four Advil every couple of hours took care of the pain in my body but it did nothing for my pride.
~~~“Come on Dad. Call over there and reserve a condo. You’re fine”
~~~I guess she’s right. How many more times will we have the whole family together? Besides, who wants to tell her no? I didn’t say it to her but I thought about it the day she had her baby, my first grandchild. I always thought how cool it is going to be to ski with my grandchildren. My first grandchild will be with me in a winter wonderland and all I can do is make snowballs with her. Isn’t that special Dr. Phil?
~~~“OK. I’ll make the reservations but you’ll have to do the rest because if this trip is left up to me to organize, it’s not going to happen.
~~~Read any good books lately? I wonder if they get the Speed Channel at the condo? Days of Our Lives? Dr. Phil? My daughter was too persuasive this time.
~~~It looks like I’m going to the snow country so I’d better make the most of it. I heard about an ‘Adaptive Skier’ program at Vail Resort in Colorado. What the heck is an ‘Adaptive Skier’? It turns out, they use SkiBikes for skiers with disabilities, bad knees, bad backs or bad attitudes. Put me in the latter category now.
~~~I checked them out on the Internet. Pretty neat. Like a mountain bike except there are short skis where the wheels should be. The rider has short skis on their feet. Maybe I can do this. I talked to my brother who is involved with Brundage Mountain Ski Resort in Idaho. “We’ll order two of them. You shouldn’t have all the fun!”
~~~Late December we headed to the condo in Idaho. I can do this. ……..I think. What if I can’t do it? No skiing. Hello Dr.Phil, and my brother is out a lot of money for an ‘Adaptive Skier” device that I can’t use.
~~~Day one. A steep learning curve, but I can do this. It is a lot less painful to fall two feet than six. And a whole lot easier to get back up.
~~~Day two. A helmet and more speed. Yippee!! I can go all over the mountain and ‘ski’ with my family again.
~~~Day three. “Get up! Let’s go. The lift opens at ten o’clock.”
~~~MS is a painful disease, but the pain is not regulated by Advil since it does nothing for bruised pride. The pain is regulated by the discovery of new devices that make an MS patient feel normal again.
~~~Dr. Phil, go ahead and start without me. I’m up on the mountain...